We are very fortunate to be living in a time when access to information in this 'technology age' is so readily available. There are now many, many website references online for Carcinoid . . . but not all are as up to date as we would like.

The following few website links will prove helpful and provide a good introduction to those seeking more information on Carcinoid and related Neuroendocrine Tumors.
The Carcinoid Foundation maintains a comprehensive website where much information can be found. From basic information on the disease to transcripts of recent lectures, you'll find information on the disease, it's diagnosis, treatment and management. The important role of nutrition for the carcinoid patient is also addressed here . The staff at the Carcinoid Foundation can be reached through their toll-free number 888-722-3132 or 914-683-1001 Tuesday through Thursday 10:00 AM to 4:00PM, Eastern Time.
Many Carcinoid patients know the name of Sunny Susan Anderson - a Carcinoid survivor since 1995- and are familiar with her website. Of particular interest to us here is the section on Monitoring Carcinoid.
The Caring for Carcinoid Foundation is the leading 501(c)(3) non-profit funder of carcinoid research. Nancy O'Hagan-herself a Carcinoid patient-is the Founder and President, and established the Caring for Carcinoid Foundation to support leading scientists whose research will hopefully lead to a cure for carcinoid. The Caring for Carcinoid Foundation is unique in its focus on research-it pursues a clearly defined, 3-step research road map based on guidance from its Board of Scientific Advisors. 100% of all donations directly support carcinoid cancer research and all donations are tax-deductible.
The Because the treatment plan for most patients with Carcinoid will include taking SandostatinLAR it is a good idea to read as much as you can about the drug. This website will describe why it is important to begin Sandostatin therapy with daily sub-cutaneous injections. Follow the links in the site to 'Starting Therapy.'


CCTS Monthly Meetings from 11 a.m. - 1 p.m.
Second Saturday of each month